PROJECT LILY : Good Week!

Friday, August 21, 2009

Good Week!

We had a great time at Disneyland on Wednesday. Yes it was very crowded and hot, but we managed to get on a decent amount of rides! The biggest event was Connor going on Indiana Jones! We'll see if he ever wants to go on it again!

Thursday we went to the Spectrum for a little fountain fun . . .

3 comments:

camille said...: D-land looks fun and I am excited to finally see if my kids like it. Cute pics from the water at the Spectrum. There is Kai with his arms draped all over Connor again. He has a little man-crush on him! :); August 21, 2009 at 4:39 PM
Unknown said...: I want to go to Disneyland with you!!!!; August 21, 2009 at 5:23 PM
Nat's blog said...: oh I really miss those two boys!!! Please tell them Aunt Nat misses them and are you kidding me with Lilys teeth...soooo cute!!!; August 22, 2009 at 12:09 AM

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ABOUT

Lily (age 5 1/2) will have major bladder reconstruction surgery on Oct 29th at Johns Hopkins Hospital in Baltimore, MD. It will be an intensive 8 hour surgery, followed by 6 weeks recovery and therapy. Lily was born with Bladder Exstrophy, a very rare and complicated birth defect, and has had many surgeries and procedures in her life so far. This surgery will be an important step for her future. She will finally be continent after having to wear diapers, pull ups, and pads till now. It will not come easy though, as it will take many weeks of hard recovery in a city across the country from our home in California. I am making this blog/journal for my friends who also are dealing with bladder exstrophy, and also so that me and Lily will have a record of our experiences during this trial in our lives.